I honestly cannot contain my excitement this morning – after finding out that an inspirational mother and daughter team have defied all odds to make a change for women suffering with Endo in Australia.
Months ago I first saw Sylvia and Lesley’s story, on a great Australian women’s blog Mamamia. It was a piece written by Lesley, a woman who was struggling watching her daughter Sylvia battle the symptoms of Endo daily, with there being no way for her to help her.
Like many women living with Endo, Sylvia had not been actually diagnosed with her Endometriosis until 2 years ago, after suffering for many years in the dark before that. Since her diagnosis she had undergone two very fast Laparoscopy’s, trying to get her symptoms under control, but once again like many women, that did not help her – only made it worse if anything.
But then Lesley came across a drug in her research, called Visanne. (click for information on the drug)
“This is how I’m helping my daughter: Bayer (an International Pharmaceutical company) has produced Visanne; a pill specially developed to alleviate the pain and inflammation of Endometriosis. Unlike the usual contraceptive pills this one has no oestrogen.
But – how unfair is this? – you can’t buy it in Australia. It’s been approved for use here but Bayer thinks there aren’t enough women who need it to make it worthwhile putting on the market. Women in Canada, South Africa, Europe and South America can get it but Australians and New Zealanders don’t get the choice.”
After discovering this drug, reading about how it had helped so many women across the world but apparently there wasn’t a ‘market’ for it in Australia, the duo took measures into their own hands, creating a petition to show Bayer that there is in fact a very large market for it in Australia who could benefit from this drug.
And today, after reaching 75,000 signatures, Bayer has listened, and has informed the women that Visanne will be available in Australia as early as next year!
I wish to extend a massive thank you and congratulations to these women. Not only have these two regular Australian women got a big drug company to sit up and listen to them, but they have also changed the way that women in Australia receive treatment for Endometriosis – giving us another option when we may feel like we have run out. When we have had multiple Laparoscopy’s, been given a cocktail of dangerous painkillers and seen more specialists than we can count, we now have something else to turn to, instead of it just being the end of the road.
This story gives me so much more belief in the power of people working together to make a change. If you believe in something and if you want something bad enough, with a few people on your side, anything is possible.
Bravo, Lesley and Sylvia. I’m sure one day I will need to turn to Visanne, and I thank you in advance for bringing it to Australia.
You can read more about Lesley and Sylvia’s journey here and the story of their victory, here